Palliative care for infants, children, and adolescents : a practical handbook /
Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, th...
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| Other Authors: | , |
|---|---|
| Format: | Book |
| Language: | English |
| Published: |
Baltimore :
Johns Hopkins University Press,
c2004.
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| Subjects: |
MARC
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| 245 | 0 | 0 | |a Palliative care for infants, children, and adolescents : |b a practical handbook / |c edited by Brian S. Carter and Marcia Levetown ; foreword by Kathleen M. Foley. |
| 260 | |a Baltimore : |b Johns Hopkins University Press, |c c2004. | ||
| 300 | |a xvi, 399 p. : |b ill. ; |c 24 cm. | ||
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | 0 | |t Foreword / |r Kathleen M. Foley -- |t Preface -- |t List of contributors -- |g pt. 1. |t Societal and institutional issues -- |g 1. |t Epidemiology and health services research / |r Chris Feudtner |g and |r Stephen R. Connor -- |g 2. |t Goals, values, and conflict resolution / |r Carson Strong, |r Chris Feudtner, |r Brian S. Carter, |g and |r Cynda H. Rushton -- |g 3. |t Barriers, education, and advocacy in palliative care / |r Joel Frader. |r Elaine Morgan, |r Tiffany Levinson, |r Jason Morrow, |r John M. Saroyan, |r Mary Jo Gilmer, |g and |r Brian S. Carter -- |g pt. 2. The |t cycle of care -- |g 4. |t Decision making in pediatric palliative care / |r Yarrow McConnell, |r Gerri Frager, |g and |r Marcia Levetown -- |g 5. |t Communication at the end of life / |r Ross M. Hays, |r Geraldine Haynes, |r J. Russell Geyer, |g and |r Chris Feudtner -- |g 6. |t Psychosocial and spiritual needs of the child and family / |r Stacy Orloff, |r Kathleen Quance, |r Sara Perszyk, |r W. Jeffrey Flowers, |g and |r Erwin Veale Jr. -- |g 7. |t Holistic management of symptoms / |r Richard Hain, |r Sharon Weinstein, |r James Okeske, |r Stacy F. Orloff, |g and |r Susan Cohen -- |g 8. |t Bereavement / |r Betty Davies, |r J. William Worden, |r Stacy F. Orloff, |r Maria Gudmundsdottir, |r Suzanne Toce, |g and |r Lizabeth Summer -- |g 9. The |t other side of caring: caregiver suffering / |r Cynda H. Rushton -- |g pt. 3. |t Special care environments and patient populations -- |g 10. The |t high-risk newborn / |r Suzanne Toce, |r Steven R. Leuthner, |r Deborah Dokken, |r Brian S. Carter, |g and |r Anita Catlin -- |g 11. |t Palliative care in the pediatric intensive care unit / |r Marcia Levetown, |r Stephen Liben, |g and |r Marylene Audet -- |g 12. |t Palliative care in the home, school, and community / |r Bruce P. Himelstein, |r Stacy F. Orloff, |r Dale Evans, |g and |r Janice Wheeler -- |g 13. The |t child with a genetic condition / |r Sara Perszyk |g and |r Anthony Perszyk -- |g 14. The |t child with HIV infection / |r Brian S. Carter, |r James Oleske, |r Lynn Czarniecki, |g and |r Sam Grubman -- |g 15. |t Children and adolescents with cancer / |r Joanne M. Hilden, |r Sarah Friebert, |r Bruce P. Himelstein, |r David R. Freyer, |g and |r Janice Wheeler -- |g appendix. |t Websites, organizations, and other resources -- |t Index. |
| 520 | |a Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members. - Publisher. | ||
| 650 | 0 | |a Terminally ill children |x Care |v Handbooks, manuals, etc. | |
| 650 | 0 | |a Palliative treatment |v Handbooks, manuals, etc. | |
| 700 | 1 | |a Carter, Brian S., |d 1957- |e ed. | |
| 700 | 1 | |a Levetown, Marcia, |d 1960- |e ed. | |
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